The Problem

It is time that the full scope of Type 1 diabetes is acknowledged, which includes millions of adults who are too frequently misdiagnosed as having Type 2 diabetes, an altogether different disease.

About Me

I was diagnosed with Type 1 diabetes in April 1995. I was hospitalized (blood sugar = 619 mg/dl) and briefly went into diabetic ketoacidosis (DKA) in the hospital. But because I was 35 years old, I was diagnosed by the hospital’s endocrinologist as having Type 2 diabetes, despite having zero risk factors, and I was taken off of IV insulin and discharged from the hospital. I was given a prescription for glyburide, a sulfonylurea, which did nothing for me.  I was sent to classes for Type 2 diabetes at the local diabetes center.  Because I am a scientist, I studied the information provided to me about diabetes and realized that phenotypically I fit the textbook description of Type 1 diabetes, and one week after I was hospitalized I confronted my endocrinologist regarding the “Type 2 diabetes” diagnosis. To his credit, the endo admitted he made a mistake; I was put on exogenous insulin, and given the diagnosis of Type 1 diabetes.  Shortly after my Type 1 autoimmune diabetes diagnosis, I was diagnosed with autoimmune hypothyroidism (Hashimoto's Disease), which is rampant in my family.

Because of the horrible treatment I received when first (mis)diagnosed, I have worked ever since to change the perception that Type 1 diabetes is a childhood disease. It is not—it is far more prevalent in adults than children. Since my diagnosis, I have met numerous others with adult-onset Type 1 diabetes who were also misdiagnosed as having Type 2 diabetes.

Since 1998, I have used an insulin pump (now using the Animas Ping).  In the spring of 2011 I started using the Dexcom continuous glucose monitor (CGM), and I wonder how I ever managed without it.  I follow a lower carbohydrate diet (not very low carb).  I am a lifelong athlete, and previously competed on my high school track and field team and my college squash team.  Now, I do power walking, hiking, kayaking, and fitness training.  I believe that exercise has tremendous physical and mental benefits for those of us with Type 1 diabetes.  I have avidly practiced yoga for 24+ years, and also practice meditation, and I believe that my yoga and meditation practices have helped me cope with the 24/7/365 rigorous care that diabetes requires.  I love to travel, and had traveled all over the world prior to being diagnosed with Type 1 diabetes.   Since my diagnosis, I have happily continued my travels (but take more precautions); my most exotic destination since my T1D diagnosis was Bhutan, in the Himalayas.  My latest adventures include seeing the United States National Parks, which are truly treasures.


  1. Nice to meet you!

    1. Hi Dmeanderings, nice to meet you, too! Glad you are blogging about LADA.